Alankaya N., Durmuş N.

2nd International Internal Medicine Nursing Congress, İzmir, Turkey, 17 - 19 December 2020, vol.6, pp.102

  • Publication Type: Conference Paper / Summary Text
  • Volume: 6
  • City: İzmir
  • Country: Turkey
  • Page Numbers: pp.102
  • Çanakkale Onsekiz Mart University Affiliated: Yes


Intraduction: Multiple sclerosis (MS) is a chronic and progressive neurodegenerative disease. Patients experience disability due to reasons such as motor, sensory, visual, cognitive, sexual dysfunction, decreased muscle coordination, advanced fatigue and pain. They often experience hopelessness, especially for reasons such as impaired body image caused by disability, inadequate social support, lack of timely needs, negative experiences experienced, prolonged treatments, activity limitations, dependence on someone else's care. Objective: The aim of this study was to determine the relationship between disability, hopelessness in patients MS and investigate the effecting factors. Methods: This cross-sectional study was conducted with 96 MS patients registered in the Turkish MS Asociation in İstanbul. The data were collected between 01 September 2019 - 30 December 2019 using the Patient Information Form including sociodemographics, the Brief Disability Questionnaire (BDQ) and the Beck Hopelessness Scale (BHS). Each interview lasted between 20 and 25 minutes. Written permissions were obtained from the ethics committee of the university, from the center where the research was conducted, and from the patients who voluntarily agreed to participate in the research. The SPSS version 22.0 (IBM) program was used for statistical analysis. The normality distribution of the data was assessed by the KolmogorovSmirnov test. Parametric tests (ANOVA, Independent-Samples t test) were used because the data showed normal distribution. Correlation analysis was conducted between BDQ and BHS. Results: The mean age of the sample was 43.01±11.06, 68.8% were female, 46.9% were college graduates, 57.3% were married, 64.6% had children, and 59.4% were diagnosed with and have had MS for more than six years. The mean score of BDQ was 9.64±6.67 and BHS score was 9.32±2.23. Moreover, a negative corelation was detected (r =-0.28) between the score of BDQ and BHS in patients (p<0.01). İn our study, statistically significant differences were found between mean score of BDQ with variables such as age, gender, education status, had children, employment status, year of diagnosis, number of attacks, and the presence of other chronic diseases (p <0.05). No statistically significant differences was found between the mean scores of the BUÖ with other variables, except the working status. Conclusion: Disability is an important problem for MS patients. While the disability in the MS patients is increasing, hopelessness level increases, too. Some of personal characteristics of MS patients also affect disability and hopelessness. We suggest that nurses who are responsible for the care of individuals with MS should not ignore the disability and hopelessness problems of patients while planning care. Key words: Multiple sclerosis, Disability, Hopelessness, Nursing